Posted in Fibromyalgia

Chasing Ghosts

I’ve written so much about my struggles with fibromyalgia that at times I can’t imagine any new way to describe it all. Thankfully fibro keeps changing and evolving, constantly giving me new material! I know how that appears. Why is there always something wrong with that woman? When will she feel good? How can she have that many things wrong with her? How can it hurt if there really isn’t anything wrong? And those are just questions from my own brain, what the hell are other people thinking??!!

It’s near impossible to imagine pain with no cause (rebels with no cause are cool, though). I didn’t break my leg or get injured; my nervous system is injured which means you can’t really see my pain and it doesn’t appear to follow much rhyme or reason – but that doesn’t mean it isn’t real.

I have a new primary care doctor, recommended by my pain doctor (when does that even happen?), and he is wonderful. But I can’t help but to think he’s at the “why the hell did I accept this patient” stage of our relationship (even though I was told he loves a challenge, hence why he got me). If I had to be honest I would tell you that I feel emergency levels of pain several times a month, every month of my life. This is pain that my body knows is bad and needs urgent medical attention because something inside me has to be in the process of dying in order to feel this way. My brain, however, knows that this is just par for the course and that the last time (and time before that, and the time before that time) I went in there was nothing wrong with me. It’s like going on Maury on a regular basis, each time certain you have found the daddy of your pain baby, only to hear those words “you are NOT the father” and now everyone just thinks you are a pain slut.

I might’ve taken that too far.

*shrugs*

It’s embarrassing. At least it is for me. And if the attitudes are just right, or if I feel the attitudes are just right, i.e. judgmental, I can very easily be discouraged to come in for any kind of treatment for a very long time out of pure shame or simple self doubt. Knowing I can’t trust my body and that I can rarely tell if I’m actually sick, actually injured, or if I’m just chasing a ghost means I’m not going to trust my uncertainty with just any practitioner unless I absolutely have to. Which means I often end up in a bad place that was completely preventable had I just gone to the doctor. It’s a crazy, endless cycle.

This is my life. This is why I’m a total dipshit.

Every day I am monitoring myself for hints of things going wrong so I can stop them before they get too overwhelming while already dealing with whatever has already gotten overwhelming. This is why when I feel good I just go batshit crazy and do all the things, which must be terrifying for people because I don’t even know how to socialize anymore; I swear to sweet baby jeebus in his little tiny sparkly spaceship that the last time I escaped and tried to be social I sat down next to someone and said “I like pot-roast”.

I’m a grown-up, you guys. I’m in charge of a kid and a dog (and a cat, but we all know no one is really in charge of a cat). Someone let me loose on this world and thought I could adult and check my own engine oil and not explode microwaves and otherwise just basically function, and I don’t even know what a normal human body is supposed to feel like.

WHO THOUGHT THIS WAS A GOOD IDEA????!!!

Take me to your leader right meow.

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Author:

Singer/songwriter and blogger/writer from Milwaukee, WI. Advocate for Fibromyalgia/Chronic Pain/Invisible Illness Awareness and Pure Ridiculousness. Possibly poops glitter. Definitely snorts when laughing. Has kept a child alive for 9 years and a house plant alive for 9 days. #chronicallyawesome

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